OMB control number
[NCBDDD] Focus Groups Among Adults with or Caring for Individuals with Congenital Heart Defects (CHD), Muscular Dystrophy (MD), and Spina Bifida (SB).
OMB 0920-1433 · HHS/CDC.
The purpose of this project is to conduct focus groups among adults with or caring for individuals with congenital heart defects (CHD), muscular dystrophy (MD), and spina bifida (SB) to obtain firsthand perspectives on the types of care individuals receive with a special focus on: receipt of and access to medical care and barriers and facilitators to accessing, receiving, or reengaging care; the journey to diagnosis; and the transition period from pediatric to adult care (for persons diagnosed during childhood). This change request includes minor modifications to the screener and the discussion guide. The burden is not affected.
The latest form for [NCBDDD] Focus Groups Among Adults with or Caring for Individuals with Congenital Heart Defects (CHD), Muscular Dystrophy (MD), and Spina Bifida (SB). expires 2027-05-31 and can be found here.
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Form and Instruction |
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Justification for No Material/Nonsubstantive Change |
Supplementary Document |
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Supporting Statement B |
Supporting Statement A |
SP Focus Group Guide
ICR Change Request Memo_01212025.docx
Att35_CHD.MD.SB Focus Groups_PRA_PIA_PrivacySubmission.pdf
SP Focus Group Guide | No material or nonsubstantive change to a currently approved collection | 2025-01-28 | ||
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Approved without change |
New collection (Request for a new OMB Control Number) | 2024-04-02 |
CHD Screening Tool
Federal Enterprise Architecture: Health - Public Health Monitoring
| Form n/a | CHD Screening Tool | Fillable Fileable | Form and instruction |
Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.