Information Collection Request

[NCBDDD] The Study to Explore Early Development (SEED) Follow-up Study

ICR 202502-0920-012 · OMB 0920-1392 · Historical Inactive

⚠️ Notice: This information collection may be outdated. More recent filings for OMB 0920-1392 can be found here:

2025-05-05 - No material or nonsubstantive change to a currently approved collection

Forms and Documents

Document Name	Status
Second follow-up survey of SEED 1 adult children Form	Unchanged
Second follow-up survey of SEED 1 adult children Form	Unchanged
Form 0920 Review of Enrollment Call Script and Consent by Caregivers and Young Adult Form	Unchanged
Form 0920 Review of Enrollment Call Script and Consent by Caregivers and Young Adult Form	Unchanged
Form 0920 Review of Enrollment Call Script and Consent and Second Follow-Up Survey of SEED 1 Caregivers. Form	Unchanged
Form 0920 Review of Enrollment Call Script and Consent and Second Follow-Up Survey of SEED 1 Caregivers. Form	Unchanged
Form 0920 First follow-up survey supplement for caregivers of young adults Form	Modified
Form 0920 First follow-up survey supplement for caregivers of young adults Form	Modified
Form 0920 First Follow-Up Survey Supplement for Caregivers of Adolescents Form	Unchanged
Form 0920 First Follow-Up Survey Supplement for Caregivers of Adolescents Form	Unchanged
Form 0920 First Follow-up Survey Supplement for Caregivers of Children Form	Unchanged
Form 0920 First Follow-up Survey Supplement for Caregivers of Children Form	Unchanged
Form 0920-25-0027 SEED Follow-Up Health and Development Core Survey Form	Modified
Form 0920-25-0027 SEED Follow-Up Health and Development Core Survey Form	Modified
Attachment 7f - WHOQOL-BREF and Scoring Instructions.pdf Supplementary Document	2025-02-26
Attachment 7f - WHOQOL-BREF and Scoring Instructions.pdf Supplementary Document	2025-02-26
Change Request Memo - EO14168 Template_SEED Follow-up.docx Supplementary Document	2025-02-26
Change Request Memo - EO14168 Template_SEED Follow-up.docx Supplementary Document	2025-02-26
Change Request Memo - EO14168 Template_SEED Follow-up.docx Supplementary Document	2025-02-26
Change Request Memo - EO14168 Template_SEED Follow-up.docx Supplementary Document	2025-02-26
Attachment 3a - BRIEF-2_changes.pdf Supplementary Document	2025-02-26
Attachment 3a - BRIEF-2_changes.pdf Supplementary Document	2025-02-26
OMB0920_1392 NonSubstantive Change_Spanish_May 2023_final.docx Justification for No Material/Nonsubstantive Change	2023-06-14
OMB0920_1392 NonSubstantive Change_Spanish_May 2023_final.docx Justification for No Material/Nonsubstantive Change	2023-06-14
Att 2a - Invitation Letter 1st Survey.docx Supplementary Document	2022-08-31
Att 2a - Invitation Letter 1st Survey.docx Supplementary Document	2022-08-31
SEED Follow-up OMB_Supporting Statement B.docx Supporting Statement B	2022-08-31
SEED Follow-up OMB_Supporting Statement B.docx Supporting Statement B	2022-08-31
SEED Follow-up OMB_SSA_9.26.22_OIRA 3.31.23_lw_SCT.docx Supporting Statement A	2023-04-11
SEED Follow-up OMB_SSA_9.26.22_OIRA 3.31.23_lw_SCT.docx Supporting Statement A	2023-04-11
Att 1e - Autism CARES Act of 2019.pdf Supplementary Document	2022-08-10
Att 1e - Autism CARES Act of 2019.pdf Supplementary Document	2022-08-10
Att 1d - Autism CARES Act of 2014.pdf Supplementary Document	2022-08-10
Att 1d - Autism CARES Act of 2014.pdf Supplementary Document	2022-08-10
Att 1c - Combating Autism Act of 2006.pdf Supplementary Document	2022-08-10
Att 1c - Combating Autism Act of 2006.pdf Supplementary Document	2022-08-10
Att 1b - Children's Health Act of 2000.docx Supplementary Document	2022-08-10
Att 1b - Children's Health Act of 2000.docx Supplementary Document	2022-08-10
Att 1a - Public Health Service Act.pdf Supplementary Document	2022-08-10
Att 1a - Public Health Service Act.pdf Supplementary Document	2022-08-10

IC Document Collections

IC ID	Document Title	Status
256059	SEED Follow-up – Call Script for SEED 1-3 Caregivers (1st Follow-Up) Other-Script	Unchanged
255815	Review of Enrollment and Informed Consent or Assent/In-person Assessment of Intellectual abilities Instruction	Unchanged
255814	Second follow-up survey of SEED 1 adult children Form	Unchanged
255814	Second follow-up survey of SEED 1 adult children Form	Unchanged
255813	Review of Enrollment Call Script and Consent by Caregivers and Young Adult Form	Unchanged
255813	Review of Enrollment Call Script and Consent by Caregivers and Young Adult Form	Unchanged
255812	Review of Enrollment Call Script and Consent and Second Follow-Up Survey of SEED 1 Caregivers. Form	Unchanged
255812	Review of Enrollment Call Script and Consent and Second Follow-Up Survey of SEED 1 Caregivers. Form	Unchanged
255811	First follow-up survey supplement for caregivers of young adults Form	Modified
255811	First follow-up survey supplement for caregivers of young adults Form	Modified
255809	First Follow-Up Survey Supplement for Caregivers of Adolescents Form	Unchanged
255809	First Follow-Up Survey Supplement for Caregivers of Adolescents Form	Unchanged
255808	First Follow-up Survey Supplement for Caregivers of Children Form	Unchanged
255808	First Follow-up Survey Supplement for Caregivers of Children Form	Unchanged
255807	SEED Follow-Up Health and Development Core Survey Form	Modified
255807	SEED Follow-Up Health and Development Core Survey Form	Modified

ICR Details

Status	Historical Inactive
Agency/Subagency	HHS/CDC
OMB Control No	0920-1392
Type of Information Collection	No material or nonsubstantive change to a currently approved collection
Previous ICR Reference No	202306-0920-008
Agency Tracking No	0920-25-0027
Date Submitted to OIRA	2025-03-28
Requested Expiration Date	1969-12-31